Open Source Genetic Data for Mental Health

Screen Shot 2015-06-16 at 9.53.02 AMThe Harvard Personal Genome Project (PGP) has worked since 2005 to establish an open-source ecosystem of volunteered data. The Mind First Foundation works closely with the PGP and is committed to leveraging the power of novel research methods (including the PGP’s data ecosystem) to better understand the brain and mind. This year our conference agenda will include the usual PGP agenda of genomes and traits, but for the first time there will be added focus on mind and behavior.

Donating your genome and health data to science is a great way to enable advances in understanding human genetics, biology, and health. We seek volunteers willing to donate diverse personal information to become a public resource. Open data is a critical component of the scientific method, but genomes are both identifiable and predictive. As a result, many studies choose to withhold data from participants and restrict access to researchers. The PGP’s public data is a common ground to collaborate and improve our understanding of genomes.

We are a member of the Global Network of Personal Genome Projects. Since the Personal Genome Project was launched at Harvard Medical School in 2005, the network has grown to include researchers at many leading institutions around the globe.

 



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